Suzanne's Story, Skin Endometriosis Part 3

Life with Endometriosis

****Please remember,this is part 3 of 3 video blogs, this blog page posts backwards, it is best to start at the bottom and work ones way up.



Here is the last video so far of Suzanne's journey with Endo, it is unfortunately not over for Suzanne, however she walks with grace through it and is proactive in her care, which is the key to good health care and management of this disease.

It seems our journey is never ending, but through education we can empower ourselves to move on in the best most positive light possible, I know few who are as brave as the women who live their lives in the often severe and debilitating pain of Endo and Fibro, my prayers forever with each one.

Again, here is our final video.

Thank you Suzanne

Life with Endometriosis


I want to thank you Suzanne for taking the time to tell your story, and thank you again for letting me offer it here to others seeking information.
The more we can offer, the more we can be proactive in our journey through Endo.

Loretta

Endo VIdeo From Suzanne, Part 2

Suzanne's Endo experience,
Part 2

Suzanne's Story, Skin Endometriosis

Life with Endometriosis


In keeping with offering other endo stories, I would like to offer this one.

I am pleased to bring you a story by a very close friend of mine, endo has a strange way of bringing things and people into your life you may never have met otherwise, if lucky, those people will change your life too, but in wonderful ways.

This has been my experience a few times now, I have met through either my support group or others, women who I would find similarity's with our stories, or just something in their posts that would draw me to them. It is a wonderful thing that has come out of this for me. I hope all of you struggling with these issues find a good group you feel comfortable with and find friends who will help you through.

Here is Suzanne, she was given endo by way of surgery, her story is on a few videos, I will post part one here, look for others as we go.

Thank you Suzanne

Another Endo story

Life with Endometriosis


A Different View

Hello again,

Part of this site will be devoted to sharing others stories, along with mine I hope to offer other points of views, experiences, types, locations, journeys, and treatments.

Endo is not a one size fits all disease, far from it, in fact experiences and pain can be completely different from one woman to the next, while one may have been diagnosed with stage 4 and have severe pain, another can have stage 1 and experience the same amount of pain.
On the other hand, one can have stage 4 and rarely feel any pain, I know of a woman who only learned she had endo while having a tubal ligation, she never felt anything more than uncomfortable periods during her whole life. Endo is as different for each person as the person themselves, there is no telling what ones experience will be, nor what treatment may help, what works well for one can have little or no effect on the other, it is a hit and miss game.

Endo has been found on many places in the body, it is rare but has also been found in men and newborn baby's, both male and female! It is found in the reproductive area, on the bladder, kidneys, bowel, intestines, vagina, cervix, skin, inside the uterine wall, (called Adenomyosis) ovaries, even on the lung although rare and rarer but none the less has been diagnosed in the brain. No one knows how endo ends up in these locations, I will get to theories in another post, to touch on it however are a couple of theories, one being that we are born with it there already, while in utero endometrium cells are misplaced into areas they shouldn't be. Another is called retrograde bleeding where as cells get backed up into the fallopian tubes while menstruation, these cells then implant and grow, then bleed in cycles as we do.
Yet another is these cells get carried through our lymphatic system and implant along the way, other causes may be environmental poisoning such as from Dioxins found in our tampons and pads, as well as disposable diapers....all of these I will touch on in a later post.

I hope you find these stories from other women's walk with endo informative and helpful to you.

Loretta