Another Endo story

Life with Endometriosis


A Different View

Hello again,

Part of this site will be devoted to sharing others stories, along with mine I hope to offer other points of views, experiences, types, locations, journeys, and treatments.

Endo is not a one size fits all disease, far from it, in fact experiences and pain can be completely different from one woman to the next, while one may have been diagnosed with stage 4 and have severe pain, another can have stage 1 and experience the same amount of pain.
On the other hand, one can have stage 4 and rarely feel any pain, I know of a woman who only learned she had endo while having a tubal ligation, she never felt anything more than uncomfortable periods during her whole life. Endo is as different for each person as the person themselves, there is no telling what ones experience will be, nor what treatment may help, what works well for one can have little or no effect on the other, it is a hit and miss game.

Endo has been found on many places in the body, it is rare but has also been found in men and newborn baby's, both male and female! It is found in the reproductive area, on the bladder, kidneys, bowel, intestines, vagina, cervix, skin, inside the uterine wall, (called Adenomyosis) ovaries, even on the lung although rare and rarer but none the less has been diagnosed in the brain. No one knows how endo ends up in these locations, I will get to theories in another post, to touch on it however are a couple of theories, one being that we are born with it there already, while in utero endometrium cells are misplaced into areas they shouldn't be. Another is called retrograde bleeding where as cells get backed up into the fallopian tubes while menstruation, these cells then implant and grow, then bleed in cycles as we do.
Yet another is these cells get carried through our lymphatic system and implant along the way, other causes may be environmental poisoning such as from Dioxins found in our tampons and pads, as well as disposable diapers....all of these I will touch on in a later post.

I hope you find these stories from other women's walk with endo informative and helpful to you.

Loretta